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By: Steve

I am an adult with cluster headaches since childhood. Have tried many preventatives, Topamax, Neurontin, Depakote. The best preventative I had from this class of medication was actually ‘dilantin’, 3...

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By: Melanie

Hello, I have read the article and I too believe It makes very much sense-however, I am living with Chiari Malformation 1 and as much as I try to stay positive, it is difficult to. My headaches are...

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By: Trisha

#24 noter: It is entirely possible your daughter has either atypical facial pain or atypical trigeminal neuralgia. I, too, woke up one morning with what I thought was a migraine and here I am, 2 1/2...

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By: Melissa

I suffered with daily migraines for 5 years. Pain killers dulled the pain so that I could continue to work full time, but I had no social life and was not able to enjoy life. I could not go anywhere at...

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By: Carol

Thank you for your post. My daughter, who is 17, has been diagnosed with New Daily Persistent Headaches. She had a spinal tap which proved that her Interluekin 8 levels were 5 times higher than normal...

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By: Melissa

Carol, it’s possible that your daughter has an allergy to her spinal fluid or nerves. I am not an expert, but I know that steroids suppress the immune system. So if they are helping your daughter’s...

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By: Patty Vize

Paula, I can’t tell you how thankful I am to be able to read about CDH and migraines in such a reputable news publication as the Times. I feel validated publically for all I’ve been through for the...

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By: Carol

Hi Melissa, Thanks for your response. I did look up the NAET information in our area and there are a few people that provide this. Thank you for passing this along. The providers do not accept...

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By: Carol

Sheryl, Post 24 I am posting again. Twice in one night, but I am awake feeling desperate for my daughter. I read through all of the posts tonight and yours struck me because of our similiarites. I too...

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By: Hessian

Great reading all of these posts-I have suffered chronic daily headaches for the last 5 years, a recent car accident made them worse. I tried Fevervew, Magnesium, Imitrex, Maxalt, Marijuana, on and on...

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By: Melissa

Carol Post 173 I am surprised that NAET is so expensive where you live. Here, it is only $70 a session, which includes the testing and the treatment. I am still working on some autoimmune problems...

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By: Diana

My husband’s earliest memory is as a 3 year old screaming with head pain. He is now 65 years old–he has suffered from daily migraines (24/7) for 62 years. He has been to multiple so-called headache...

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By: Melissa

Hi Carol in post 173, I am currently looking at prostaglandins as a source of my migraines. Although the daily migraines I had for 5 years have not returned, I have continued having reproductive,...

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By: Chris R.N.

I too suffer from CDH and have for about seven years. I turned forty this year and fear that the rest of my life will be the same. I worked full-time as a nurse for a major hospital in my area. When I...

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By: Paul

Being a new(er) sufferer of New Daily Persistent Headaches, it is really good to see that I am not the only one out there. It has been very difficult for me dealing with these headaches. I was not one...

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